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Patty Morris-Hildebrand (ibpatti32)


March 12, 2007


Click here.


Granite CIty, Illinois


August 29, 1955


Chronic Myelogenious Leukemia


10-12-94


Lumpectomy


No, but it is now needed


Cancer Survivor


The inability to work and provide for my family as I NEVER remarried since div. in 1986. And, being in this ALONE, for I do NOT LIKE to burden my children


To live each day like it is hte gift that it truly is


just support


Low grade fevers, fatigue, extreme headaches, anemia, bone pain


stem cell harvest,central line insertion,(1995) multiple bone marrow biopsies,(every 12 months, then 6 months, vertioblasty (2005) unable to breathe, stand up straight or walk.Sep. 2007 after raising my GLEEVEC dosage to 800 mg per day I am happy to say that I am now back in REMISSION Yeh


No radiation


Interferon from onset- continued hospital admissions,recurrent infections, suppressed immune system
Gleevec May 2002 to present, minimal side effects, mostly nausea, malaise


No match found. All my children tested immediately after diagnosis. They are all in the Natl Bone Marrow Registry and all say they hope they are a match for someone at some point so that they can help them unlike their MOM never having a match to date.


NONE, though only income is disability.




ibpatti32's Cancer Blog

August 20, 2008

Laura's last week @ home and I spent it in the hospital:-(Views: 121

Well, Laura just left today just one day after I get out of the hospital. Not what I had planned for her last week at home. It seemed that CBC results promted my ONC to call me to tell me that my RBC was 1.80 and my platelet count had dropeed to 108 and it had been staying in the 200-220 range, so into BJH I immediately went for immediate transfusions around the clock. Dr. Weiss tried so hard to get me home before Laura left and it happened though I wasn’t able to go through with the surprise plans for Laura’s last week here, for I hated her leaving with her last thoughts of me being in the hospital. GRRRR! Darn, I tried so hard to be healthy. I am eating very heathly, mildly exercising though I am trying to work my way up slowing. Laura moved her treadmill into my computer room and left it for me, so when I am feeling a bit stronger I am really going to give it a shot. The movers came yesterday and got her things and she left this afternoon for the drive down, her boyfriend drove down with her and he is flying back on Friday. The only thing that I was able to contribute, unfortunately was, I did get the movers for her. She had actually planned on driving a 18’ rental truck. This for my little girl that drives her Little Red Sunfire that her license states “WOA BBY”, that would be my girl. I just couldn’t stand to see that, I had to know that her things were being moved and she wouldn’t have to do a thing but tell them which wall everything goes on. School starts on Friday and she starts her job on Saturday night. It worked out well, in ST. Louis there is 2 restaurants that are each privately owned called,” The Melting Pot”. When she began looking into Grad School in St. Pete, she learned they had a Melting Pot there, what luck was that. So, of course they hired her on the spot. So, fortunately, she will only have to adjust to the difference in the restaurants and meeting people ( Which she is great at and always has a smile on her pretty face). Well, I am tired, though I have taken a few cat naps today, but being in the hospital you have to learn to go back to sleep after awaken or you’ll never get any sleep. Also, my WBC was 22.3 so I was in isolation and on antibiotics.
I do hope that everyone is well. Hugs to all
Love, Patty

Thanks for the update. Glad you got at least a day home before Laura was off to school. We dropped my daughter off at school a couple weeks ago. Daddy’s cry too…don’t tell

Blessing
Mac

I remember when I went off to school…That’s great that she was able to get a job like that. I loooooove the Melting Pot! When/if I get my old appetite back, we are going to celebrate there. I’m sorry you weren’t able to do the things you planned. But happy you did get the one day! Glad you’re back home.

Dear Patty; So sorry you had to go through all of that just when Laura was about to leave for her new adventure. Maybe it was destined to be that way, so there was not enough time to feel sad and teary about her departure. Some things happen for a reason. Not to say that you aren’t feeling that way but now that she is settled you can chat to her about all her new adventures and also you can start to get your own strength back at your own pace. I hope the tread mill helps you down the road. Just try and get some proper sleep. I know that can be the ruination of good health. I am now going to take sleeping pills. I have fought it for too long now. My mind plays tricks and constantly reminds me of what is happening, what will happen. No more of that I hope. Take care and keep us posted on Laura’s and your adventures. Weezie

Hi Patty,

Thanks God that you’re home. Everything happens for a reason. Just keep yourself active and healthy so you could assist Laura on her new adventure of her life. Going to the gym and doing a lots of exercises like swimming and yoga really helps. Hugs and kisses!

Thanks for all of the really nice words that were SOOOOOOOOOOOO needed. My friend, Connie had to take me to the hospital last night for I was having a bright red rectak=l bleed. After the colonscopy which is my sed=cond in 3 yrs, but they found 2 polyps that with the leukemia history they advised to get them out ASAP, though I haven’t wanted to worry Laura about it yet, for her first night @ work is Sat. night. If there becomes something to worry about then I will contact here. Can you believe in all of my years this will be my first BD without her. I wish I could just sleep all day on the 29th. Today after getting home from the hospital I feel asleep and woke myself up calling Laura’s name, and with no answer, it quickly woke me up. I don’t know what my purpose is any more I feel so sad and like I have no purpose in this life anymore, though I would never tell Laura this for I want her mind free to learn. It seems as though it is just one complication after another. I don’t know just how many complications I am up for anymore with no one at my side. I realize that there are so many others that are facing much worse paths than I am and I hope you can forgive these thoughts that I am having. Love, Patty


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